The Telangiectasia Self Help Group was founded in 1985 to maintain a register of sufferers and to put affected
families in touch with one another. The group was initially funded by a donation from the Thames/LWT Telethon Trust. A newsletter is sent to all members on an occasional basis informing them of the developments in the treatments of this disease. |
Hereditary Haemorrhagic Telangiectasia |
( HHT ) also known as Osler-Weber-Rendu disease, was first described over 100 years ago. It is due to a faulty gene
and is very variable causing some people considerable distress whilst others escape
with much less severe problems. For many patients, nosebleeds are the main problem although bleeding from the lining of the stomach and intestines occurs in about 20% of cases. The Telangiectasia Self Help Group is affiliated to the following Support Groups : |
For further information or if you wish to become a member please contact : Mrs Diana Lawson Co-ordinator/Organiser Telangiectasia Self Help Group 39 Sunny Croft Downley High Wycombe Bucks HP13 5UQ ENGLAND Tel : (+44) 01494 528047 or alternatively E-mail: |
To view our Fact Sheets please click on the links below. |
General Information |
Pulmonary Arteriovenous Malformations |
The Nose in Hereditary Haemorrhagic Telangiectasia |
